Dysautonomia climbing and getting confusing

The more I continue to research, the more I learn from others and the more videos I see, Dysautonomia has come out of the wood work to the max. My most recent read is of  a male infant with Dysautonomia. First off, not many men were coming out with their symptoms but mostly, women. Men are just finally feeling comfortable about talking about it. More and more male infants and male toddlers, male preschool, male middle school, male high school is on the rise. And, lets not forget adult males.

Dysautonomia is not just a female dysfunction. It's all sex. It's everyone of all ages. Also, Dysautonomia affects everyone differently. Some cases can be devastating and some cases can be mild,and there is, in between. The numbers are growing and people are desperate for a cure. They want awareness. They want someone to do something about it. I know I do.

What makes this even more complicated is everyone has a story and a different story with different symptoms but yet, similarities. Most have been told from certain doctor's what they have and yet most of us are not able to grasp at everyone's symptoms, but from what we all have experience and of course what we were told by that certain Physician. Yet, every Physician is not on the same page. How is this possible? Why? What is the problem here? Is it really this complicated? Well, obviously yea!

It really is very aggravating. With so many symptoms and a WIDE variety, it just does not stop. People are trying to help from their experiences. Some people are on Protocol, some people are doing Natural Remedies, some are hoping their symptoms will go away soon and, taking a wide variety of medication for each and every symptom and, the list goes on. Not one person is really the same when it comes to any health disorder. This is what makes things very complicated for all.

Even media has taken a turn to help those with Dysautonomia and yet, still no answer. Media even questions it. If the media is questioning and trying to also bring awareness, how is anyone going to actually help? Well, from my point of view, we are all taking precautionary steps to be able to share and help as much as we can. Just remember, what is good for one person might not be good for another. This is where people start getting depressed and giving up hope.

We can't give up hope. We just have to continue down the path we are going. I know it sounds easier said than done. But, we can't go around feeling down on ourselves. And, I know sometimes that is hard too. It's like you are in a no win situation. We are all giving a story. We are all trying. We want to help. You want to help. That is the "positive" of it all.

Comments

  1. donnaMarch 16, 2012 at 11:11 AM

    Your blog is so true. It is hard to stay positive especially when we have more bad days than good. This is the case for me. Also since there are times I go out and dance the night away you would never know I suffer extreme fatigue. But I have to rest all day for that and for some reason a bit of wine must dull some senses cause I'm the energizer bunny lol. Unfortunately I pay the price the next day. Most often I have to rest all day. Oh well the price of having fun. Hay wait a minute, I'm wondering if some wine does some effect on me to be ok at least for the night maybe those doing research on Dysautonomia should look into something that gently dulls the ANS. That would help a lot with at least daily activities even if it can't control our other dysfunctions. Keep up the great work Viv I'm here if u need help . Love Donna

    ReplyDelete
  2. Dysautonomia maniaMarch 18, 2012 at 1:30 AM

    Thank you Donna! Actually it's most Alcohols that loosens up people with Dysautonomia and you feel normal while in the moment but, of course the down side is your body feels like crap the next day and than the symptoms keep on coming on through the week even months making you more fatigue and feeling horrible. But, it is interesting what you said. I thought about the same thing. Very interesting. Thanks again for your support! xoxo Miss Vivian

    ReplyDelete
  3. MickApril 13, 2012 at 6:23 PM

    I'm suffering from what I think is dysautonomia.
    How is the research on this doing?
    I see nothing coming.Even not a debate about this
    on tv. Only some posts on a remote sire like here.

    I need some hope!

    ReplyDelete
  4. Dysautonomia maniaApril 14, 2012 at 8:50 PM

    Hi Mick! Dysautonomia is an Autonomic Nervous System Dysfunction. The ANS is a complicated situation when it comes to finding relief or, a cure. Symptoms that arise in each indivisual can be helped but yet, not curible to my knowledge or others who are trying to find answers like, ourselves. We all have a story yet we are all different and not the same. Basically we are all helping each other the best way we can through expierence. It has been televised a few times but than it just fades. We have many communities on Facebook of others with Dysautonomia that might help you in a way. What makes you think you have Dysautonomia if you don't mind me asking? You can send me email if you prefer private. Thanks for coming across my blog Mick! Hopefully I can shed a little light on you. Peace and Light Miss Vivian C. Roberson

    ReplyDelete

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