Dysautonomia Mania

Happy Holidays, Merry Christmas, Happy New Years to everyone! It's that time of year for cheer and fun. We go though this every year. ; ) With the Holidays we tend to have lots to do and so much stress is added to our system. Also the wonderful food and spirit and ,over doing it. How can we help it? It's so good. For some of us, there are just certain things that can aggravate our system. One thing is Alcohol. Alcohol does allot to the ANS (Autonomic Nervous) system. I am not saying you can not drink but ,what I am saying is you will have to figure out with Dysautonomia if Alcohol does something to your system, which in most of us, it does. First off Fibromyalgia is piece of  Dysautonomia. Not everyone with Dysautonomia has Fibromyalgia. But, with the ANS system Alcohol plays a major roll when too much is consumed or, maybe just a little. It depends on your Dysautonomia and how it affects your system. Alcohol affects the nervous system by stamping down the signals between

It's been a long while since I have put up a blog. Like I said before in my other blogs that, it does take some time to write about it because I too go through it and, so does my son. I am able to share our experiences with Dysautonomia and, help out others who need the help and need the education on what happens to someone with, Dysautonomia. I also get my knowledge through educated doctor's from Europe who know this disease, very well. I have also read up on allot of other people who have Dysautonomia and read their stories on, their Blogs. To you all, my heart is with you and, if I can shed some light on you in some way, I will do my best. I know some are going to write a Book. Much blessing  to you as well on helping those understand about their disease that is very frightening when, most doctor's here in America have not researched it or learned it in,  medical school. My primary care doctor is one person who is honest and up front and did say that, he never learned

That Anxiety feeling. Is that what it is? Are we having an "Anxiety Attack" or is it all in our heads?  That awful feeling that comes from within. It just comes out when ever it feels like if for no apparent reason at all. That feeling is horrible, debilitating, someone call me a shrink or give a pill to stop it! People are looking at me like I am insane or just plain crazy. Am I? Why do I feel this way? I "HATE" it! Why is this happening to me? I asked why? I just want to go for a walk  in the beautiful sun. I want to go to the beach but, I can't. I want to be in open spaces but, I can't. I want to go to the mall, make it to the second floor but, I have to come down, fast. My chest is pounding. My hands are sweaty, I am going to pass out. No one in my family understands me. They think I am insane. Get me out of this nightmare, PLEASE!  OK....can you relate to what I am saying? Because if you can, your not alone. This happens to many people with, Dysautonomi

Hope this blog finds everyone well! I will like to share today about body pain with Dysautonomia. The pain with this disease is no fun. We call it "Fibromyalgia". It is in the same family. This pain gets out of control with the type of weather patterns we been having lately all around the world. We do know when it rains outside, you always here people complaining about their joint pain, arthritis is acting up, sciatica, etc. It really does. The problem is when you have Dysautonomia, those pains are ten times worse then the average person. Yet, they do not understand this because, they never heard of this disease or, do not have it. That plain and simple. This pain your having has allot to do with the earth atmosphere. The  barometer pressure of the weather patterns.You can't get any relief  what so ever lately. You find yourself complaining more about your pain then any other time of your life with this disease. It seems to happen quiet frequently. Well ,that is becau

http://www.bostonosteopathichealth.com/index.htm Dr. William Foley is an OD Doctor out in Newton Massachusetts. He works with people who have Dysautonomia and, he knows about Dysautonomia. I know him personally and asked him if I could share his information and, he did give me permission. Please click on his link and learn more about what  he does. I can assure you, he does help those with the Autonomic Nervous System Dysfunctions. Allot of people might ask, what is the difference  between an OD(Osteopathic) doctor and an MD(Medical) doctor?  The OD doctor works with his hands. He can get your system flowing in the right direction. The MD doctor works with machines and medications. Both Doctors go to school for 12 years. In reality, BOTH doctor's are very important for your health. Never exclude one. You need them all to keep you healthy and, help you with your health. For those who live to far to see him, ask around to see if you can find a good Osteopathic doctor in you

http://clinicalposters.com/news/2011/0325-dysautonomia-mitochondria-pots.html There is a video of a 17 year old girl that talks about her pots. She was at Mayo Clinic. Please watch video and read what they say about Dysautonomia. Keep raising awareness peoples. I know it's not easy. I will share with you my stories very soon. Not everyone has a glorious story to tell and I am sure when you hear mine, allot will relate to what I am dealing with.  xoxo  and blessed be. Miss Vivian 

Well, I did say in my past blogs that I will find the medication that some from other countries use for, "Dysautonomia". I am not sure if it is the cure but,I am learning from the Doctor who is teaching me about Dysautonomia that it works and, from other resources in, other countries. I also have relatives in Europe so, I had an Aunt do some research for me recently and, speak to their medical field in their area. According to her, "Nootropil" is what they use for "Dysautonomia" and that you need a prescription for it. After hearing that I did, more research. I searched the internet and found Nootropil here in the, USA. We call it "Piracetam-Nootropil". When I looked up what we used it for I was very surprised to what, I read. It was not used for Dysautonomia but, for other things and other medical issues. We call it the anti-aging "Brain Drug". I read an ad that said: "Wake up your brain! - With Piracetam (Nootropil)"

Here is some of the different types of Dysautonomia: * Local Dysautonomia * General Dysautonomia * Reflex Sympathetic Dystrophy * Autonomic Neuropathy *Genetics Types discussion: Most physicians view Dysautonomia in terms of failure of the sympathetic or parasympathetic components of the ANS(Autonomic Nervous System), but Dysautonomia involving excessive ANS activities also can occur. Dysautonomia can be local, as in reflex sympathetic dystrophy, or generalized, as in pure autonomic failure. It can be acute and reversible, as in Guillain-Barre syndrome, or chronic and progressive. Totally Different from regular Dysautonomia where people mistaken to think it is the same is: Riley-Day syndrome is an inherited disorder that affects the development and function of nerves throughout the body. This is Familial Dysautonomia. Familial Dysautonomia and Dysautonomia are "different". Many doctor's now about the Familial Dysautonomia. This condition is seen most oft

I wanted to write a little bit about this disease on how it does affect both sex. As you will see, many women are not afraid to share their health concerns and issues compared to men. You will see many blogs of women and Dysautonomia but, where are the men? Very few men will share. Dysautonomia is not just a female disease. It is a disease of both male and female. We need more men to share their stories who have Dysautonomia or, believe they have it but are afraid to come forward with it. Good example on how I know is because my son has Dysautonomia. That is correct. My son got it from "me". It is called "Genetics" in my case. We all have hormones in our bodies and, hormones play a big part with Dysautonomia. The reasons this disease is on the rise here in America because, this disease arises from different parts of Europe. Especially Germany or, Russia as a good example of where it might of started. We are mostly or, maybe all pretty mixed with different et

Hormones to stress response which plays a"big part" with Teenagers with Dysautonomia. Here are the definitions. In my next blogs I will write them all more in depth. It is very important to know each one of these in the connection with Dysautonomia and there is allot to write about all 3. Dopamine is a neurotransmitter which is produced by the brains of many organisms, including humans. Like many neurotransmitters, dopamine has several different functions. It plays a critical role in the function of the central nervous system, and it is also linked with the brain's complex system of motivation and reward. Altered levels of dopamine in the brain can cause a range of symptoms and problems, ranging from Parkinson's disease to Attention Deficit Disorder (ADD). Norepinephrine is a type of neurotransmitter, which is a chemical responsible for moving nerve impulses between neurons. It is found in both the central and sympathetic nervous systems, and it is made by the adr