Dysautonomia Mania

I like to share with all my readers on why Dysautonomia is on the rise in our times and, these are my thoughts and my words of wisdom. Back in the days of World War 1 they called it "Neurasthenia". This was a term used back in the days of destruction. In those times they classified it as a mental disorder and for the insane when in fact, they were not. If you think about it, what is happening in our times today? We always say, "History repeats itself." True statement. We are very repetitive humans when it comes to life and, who wants power. We are in the times of destruction. In this decade we have lost many people around the world to Catastrophic happenings. Good example: Hurricane Catrina. It caused much "Mass Destruction" in, New Orleans. Not to forget the Tsunami in Indonesia where, we also lost millions of people. Also, Haiti with the massive earthquake that killed many people as well and, we can't forget, 9/11. The list goes on. Also, we

Here is a story I will share with all about a nice lady I met through e-mail and on line. She has her experiences with Dysautonomia and she gave me permission to share her story with all of you. Below her story will be her information and her phone number if you like to contact her. Her story inspired me and I hope it will do the same for those who are interested. Enjoy this blog. xoxo Miss Vivian At the age of 13, Amanda, an aspiring musical theatre actress, started touring professionally with “The Sound of Music” across the state of Florida. She attended school part-time. After winning many awards and training in New York, her future looked bright. She was accepted into the renowned Dreyfoss School of Fine Arts and chosen for the first-ever American Idol camp. Her life was just beginning. By the end of her tour and the last few months of 8th grade she began to get strange ailments. It started with stomach aches and severe nausea that caused her to miss

Is there a cure for Dysautonomia? Well so far all the doctor's who know about Dysautonomia can do is just treat each symptom that arises in your body, and try to make you feel as normal as possible depending upon the health issue you have with your Dysautonomia. Remember, Dysautonomia is not the killer and Dysautonomia effects mostly your Central Nervous System.  My son has Dysautonomia and he is a teen going through the changes. It makes it really hard on teens due to the hormonal changes they will go through while they start moving into adolescences to become adults. It is very hard to find a cure since we are talking about the Autonomic Nervous System which is very wide. Different people have issues with the ANS system and they can vary from many different types of diseases. I was told from someone very dear to me who knows of someone who has Dysautonomia that they tried some sort of pill that was in some part of Germany, from a doctor there. They do not remember the name of

 I'm learning at all times from doctor's, literature, books, other experience people not in the medical field, etc. about Dysautonomia and trying to help others who do not know or, who have it and wants to understand more about this health issue that is, arising in many people everyday. This has to be expressed so that more people can get the right medical treatment from the right doctors who are educated in this field. Dysautonomia is a Autonomic Dysfunction. Basically your "Autonomic Nervous System" is attacked by Dysautonomia. What is the Autonomic Nervous System? The Autonomic Nervous System is part of the Peripheral Nervous System. The main system of PNS Short for Peripheral Nervous System is to connect the Central Nervous System (CNS) to the limbs and organs. The PNS is functionally as well as structurally divided into the Somatic Nervous System and the ANS. Now what on earth is the Somatic Nervous System? Getting more in depth here because I am going to break

Hello everyone! It has been a few weeks since I have not written. I been dealing with different doctor's for my son and getting new information all the time. Seems like this time we are finding doctor's who have been very helpful. I like to thank the Children Hospital Cardiologist in Boston for being very supportive and a great help. Recently my son was put on a Beta Blocker.  It is called Betaxolol. (Betaxolol relieves anxiety and panic symptoms much faster than antidepressants. It works within 1-3 days while antidepressants take up to 12 weeks.) He takes a .5mg a day. To remind you, people with Dysautonomia are sensitive to medications. If they take normal dosages they will get most of the side effects. It is important to take small dosages because your body is 80 to 85 percent low on fluids. What this Beta Blocker is doing for him is controlling his hard throbbing palpitations that never go away. It is with him 24/7. The palpitations is another main symptom most complained

Feeling fatigue all the time is one of the main symptoms of Dysautonomia. Your body just feels so tired and beat up all the time. It just becomes depressing to you. All you want is to feel energized and be able to do the fun things people do but, your body just always feels so run down. It does not help with certain medications you have to take that adds on to your, fatigue feelings. Friends and family don't seem at times to see how you can be so tired all the time to the point they think, you are just being plan lazy. In all reality, "you are not". They have no clue how your body is functioning. You can tell them time and time again and they will just throw in things like ,how they can relate to you and how they get tired too. The point is, your totally being honest with them. You really don't have that extra knack to do things that you would love to do. The thing is your fatigue is not caused by becoming  tired or weary, as everyone does from time to time at the

People with Dysautonomia are weather pertaining. This means, your body is effected by the weather. If you notice at times when it is too hot or too cold, your body goes through a massive change. You feel awful all over. I learned this from a medical doctor from Russia who is an expert in Dysautonomia. For allergies the one medication this doctor prescribes is Allerx PE which is a day time and a night time pill. This doctor recommends that you cut the does in half. Don't take the full dose. You will take a half of the day time pill in the am and take a half of the night time pill before bed time. This pill is taken orally and it is a Decongestant/Antihistamine/Anticholinergic. *as always check with your medical doctor first to see what allergy medication is good for you. The over the counter medication that you can try is Zyrtec or Loratadine(Claritin). You can see which one works best for you. Once again, cut the pill in half and take it once a day to avoid the side effects.

Speaking from my end of my personal experience, I know there is a way to avoid the side effects on medications you take. People with Dysautonomia fear the side effects. Who wouldn't!? You know that when a doctor prescribes a medication for you, the first thing you look for are the side effects. Once you start reading "ALL" the side effects it gives you, then you don't want to take them because of fear of having it, or experienced the side effects from another medication and your head starts on it's little journey of  "Medication Phobia". Let me try and help a little bit with that issue and, hopefully ease your way of thinking about medications. You know you need to take your medications to get better and move on with life. Easier said then done huh!? Well, all I can say is "You can do it!!" : ) The best way to avoid the side effects is to take smaller amounts at a time. Thing about it? The smaller the dose, the less side effects. After all yo

Beta-Blockers: Tenormin, Corgard, Inderal, Lopressor Kerlone, Zebeta, Toprol Benzodiazepines: Klonapin, Librax, Librium, Ativan, Xanax, Valium Tricyclic Antidepressants: Anafranil, Elavil, Pamelor, Sinequan, Imipramine Atypical Antidepressants: Effexor, Wellebutrin, Serzone, Desyrel Selective Serotonin Reuptake Inhinitors: Lexapro, Prozac, Paxil, Zoloft, Celexa, Luvox

As I am going through this journey on helping those with Dysautonomia, I found out from a Medical Doctor who I am very found of, knows a good  Herbal Supplement for those suffering with Dysautonomia with, the agitating anxiety. Anxiety seems to be one problem that the body has with this terrible Immune Dysfunction Disorder. When your body is not feeling well, your body gets anxious and no matter what medications they give you, your body is feeling that terrible sensation. No fun at all. You wish someone can just go in there and take it out. Yet you tell your doctor and they throw all these different types of medications at you wondering if it would help. The one Herbal Supplement that this doctor swears by it because, her mom had Dysautonomia is, "Valerian Root". You can take the Valerian Root with your other anxiety medications. *As always check with your doctor first. Find a natural herbal store that carries Valerian Root. The best way to take it is at 250mg. People w

Anna Hohler, MD Boston University Medical Center Dept. of Neurology 715 Albany Street, C329 Boston, MA 02118 617-638-8456 Autonomic Laboratory Comments: Dr. Hohler treats dysautonomia, MSA and Parkinson's disease with autonomic dysfunction. **** After almost 15 years and countless neuro consults, Dr. Hohler was the first to take me seriously. Paul LeLorier Boston Medical Center 88 East Newton St. Boston, MA 02118-2393 (617) 638-8734 POTS, NCS Autonomic Laboratory Peter Novak, MD, PhD Autonomic Center at University of Massachusetts Department of Neurology University Campus, 55 Lake Avenue North Worcester, MA 01655   POTS, Hyperhidrosis, Dysautonomia, MSA, Parkinson's Disease with Autonomic Dysfunction Autonomic Laboratory Treats adults   Dr. Lawrence S. Rosenthal University of Massachusetts Medical Center 55 Lake Avenue Worchester, MA 01655 508-334-6194 NCS Comments: Dr. Rosenthal is not a specialist, but he does

Here are the Signs and Symptoms of Dysautonomia: *(Always check with your doctor first if you think you have these symptoms) It takes a good doctor who will know about Dysautonomia. If your doctor does not know, ask them to refer you to one. Fatigue Agoraphobia Heart Palpitations Tachycardia Rapid Heart Rate Headaches IBS (Irritable Bowell Syndrome) Gastroesophageal Reflux Disease (Gerd) Fibromyalgia Hypoglycemia Premenstrual Syndrome (PMS) Tinnitus Hay Fever or other Allergies Excessive Gas Nausea Neck Aches or Pain Arm and Leg aches Aches and Pains in Hands or Feet Backaches Generalized Anxiety Disorder Social Phobia Panic Attacks Specific Phobias Panic Disorder Depression Chest Pain Dizziness Mood Swings Shortness of Breath Sleep Disorder Visual Disturbance Temporomandibular Joint Dysfunction (TMJ) Concentration or Memory problems Skin Problems or Rash Weakness Twitching Muscles, Shakiness  Numbness or Tingling  Nervous System Imbalance Scolio

My son  was diagnosed in 2009 with Dysautonomia. According to the doctor who is teaching me about Dysautonomia that, it is Genetics and I have it to but, not as bad as my son. It took a very long hard road and many times of tears and anger to figure out ,what on earth is going on with him and why? I have been through so much  through the process until one day, I started doing my own research and speaking to doctor's about it. I started taking my own knowledge with there knowledge. What I want you all to know is, What exactly is "Dysautonomia"? I know, you never heard of it, right!? Well my friends, it exists and the journey begins. Dysautonomia is a Autonomic Nervous System  Dysfunction. When I say, "Dysfunction", It "REALLY" is. You never know what your body is going to do from time to time during the course of a day. You never know how you will wake up and  feel which in can be debilitating. Not knowing how you can look like everyone else but, y