The Diagnosis of Dysautonomia


My son  was diagnosed in 2009 with Dysautonomia. According to the doctor who is teaching me about Dysautonomia that, it is Genetics and I have it to but, not as bad as my son. It took a very long hard road and many times of tears and anger to figure out ,what on earth is going on with him and why? I have been through so much  through the process until one day, I started doing my own research and speaking to doctor's about it. I started taking my own knowledge with there knowledge.

What I want you all to know is, What exactly is "Dysautonomia"? I know, you never heard of it, right!? Well my friends, it exists and the journey begins.

Dysautonomia is a Autonomic Nervous System  Dysfunction. When I say, "Dysfunction", It "REALLY" is. You never know what your body is going to do from time to time during the course of a day. You never know how you will wake up and  feel which in can be debilitating. Not knowing how you can look like everyone else but, your body is in another space where no one can reach or touch. Your totally alone and scared. No one understands you and yet they all have some sort of an idea on what on earth is going on with you which in most cases, they are wrong.

It's totally frustrating for those living with it. Family, friends, acquaintances after awhile telling you it is "all in your head" and not realizing that it is "not". Don't be angry, they really do not know. Only we can hope and pray they will soon understand your symptoms and your disabilities with this disease and be more helpful and supportive through out the years.


Most modern doctors who hear about this mysterious condition merely shake their heads in wonder.  Consequently they are less capable of recognizing the manifestations of this condition than were their old-time counterparts, and tend to be far less sympathetic to its victims.

So in this short note, it is a wide variety of symptoms that mimic other symptoms that others would go, "Oh you have this" "You should do this" "You should try this" etc...

In reality....you shouldn't.

Once you get diagnosed with it (That's if you find a doctor who totally understands which in most cases, good luck) You will be on a journey of help and hopefully recovery.

To remind you Dysautonomia is wide. You are either born with it, or you get a virus that triggers it and last for years. It can happen to anyone.Never let anyone tell you any different.

Until my next notes, I will give you some insight on medications, clinics, where in this earth is the place to actually go for help. You will be far wide surprised. : ) Until then...Blessing and light! xoxo Miss Vivian

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